I met Robyn Mason at an Institute for Functional Medicine (IFM) conference this last year. Robyn is a nutritionist from Australia but currently living and practicing in London, England. Robyn has been diagnosed with Celiac disease – via blood work and the gold standard test which is an intestinal biopsy. But Robyn never had a single gastro-intestinal (GI) symptom!
Perhaps this is your story too. Did you know that ONLY 1 in 8 with Celiac Disease do have a GI complaint of some sort? The other 7 have issues – like Robyn – of asthma, hay fever, rosacea, fatigue, anemia, sensitive skin, acne, etc.
In conventional, main stream medicine, Robyn is a-typical. But really, she’s the classic story.
A celiac diagnosis is often missed because the typical Celiac doesn’t have GI symptoms. It’s an absolute MYTH that Celiac disease only affects the gastointestinal tract. But it is taking a long time for that myth to die. There are thousands of studies showing that Celiac Disease can affect the brain (gluten ataxia), joints, skin, energy levels, etc.
I hope you’ll take 30 minutes out of your day and listen to Robyn’s story. Chronic health conditions, seemingly unconnected, ought to be a huge. red. flag. to any health care provider. If you have a plethora of symptoms and they are treated in isolation (an inhaler for your asthma, antibiotics for your acne, iron for your anemia), you are in desperate need of a different kind of health care provider.
**** Now, all that said, if you have been tested for Celiac disease but it was negative, IMO that isn’t necessarily the end of the story. I lecture every year about the false negatives that occur in Celiac testing. Tests like the EMA and tTG are only 100% accurate when there is total villous atrophy. It’s like waiting until you have end stage cancer to declare that yes, indeed you do have cancer. I have an entire downloadable E course on the subject here. It’s up to you to be your best advocate so PLEASE know the facts. As a health care provider myself, we can’t know everything. So get involved and don’t just take your doctors word as the last word.
Back to our conversation, Robyn and I also touch on what happens immunologically when one is cross contaminated or “glutenated”. Robyn consults to Cyrex Labs – a lab way ahead of their time and they offer advanced Celiac and non-celiac gluten sensitivity testing – so she fully appreciates that not only does gluten cause fatigue and malaise, but immunologically, much more is happening beneath the surface. Robyn reviews her delayed symptoms and connects the dots. We’ll also dive into this deeper in a subsequent interview I hope!
When you are done listening, please spread the word. Our goal is to help more of those walking wounded out there.
Surviving not thriving.
And while there are plenty of root causes, gluten could easily be one of them.
When we know better, we can do better.
About Tracy Konoske, MS, RDN
Tracy Konoske is an eclectic clinician and uses a blend of natural, integrative, functional, and personalized medicine to help her patients feel their best. Tracy understands that there are 4 drivers of chronic disease: Toxins, Infections, Stress, and Diet. And it's often a combination of all 4 that lead to a chronic health condition, and thus it takes a treatment plan addressing each of the 4 to resolve and reclaim good health. Tracy has recovered from 2 "perfect storm" situations which had drastic effects on her health and led to multiple mystery illnesses and diagnosis including Lyme.
By reducing the burden of these triggers, Tracy is successfully resolving:
- Fatigue (anemia's, adrenals, thyroid-related, chronic fatigue syndrome, ME-CFS)
- Auto Immune Conditions (Hashimoto's, Lupus, MS, Rheumatoid Arthritis, Celiac)
- Mental Health Conditions (anxiety, depression, OCD, ADD/ADHD)
- Cognitive Dysfunction (trouble concentrating, forgetfulness, symptoms of early Alzheimer's)
- Digestive Disorders (low hydrochloric acid, "leaky gut", Candida Albicans, Small Intestine Bacterial Overgrowth SIBO, IBS, Crohn's Disease, Ulcerative Colitis)
- Migraines and chronic headaches
If you've one or more of the above-mentioned conditions, or have been told you have Lyme or chronic Lyme, there's a good chance you are in the right place.
If you have a history of chronic sore throats, tonsillitis or tonsillectomy, mononucleosis, glandular fever, shingles, and/or cold sores, there's a good chance you are in the right place.
There are no coincidences. All good things come from God.